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Supporting Your Families with Rare Epilepsy VIP Siblings
Resources for Patient Organizations
The VIP Sibling Project offers a variety of free online materials, many downloadable, for patient organizations to offer their families. Some items are digital versions of contents in the VIP Sibling Kits and Parents & Caregivers Kit.
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Parents & Caregivers Guide
Educates parents and caregivers on the impact of a rare epilepsy on siblings, shares learnings from the Sibling Voices Survey, and offers ideas to deepen communication with VIP siblings.
![VIPSibling_lovenotes_final](/sites/default/files/tools-resources/2023-03/VIPSibling_lovenotes_final-400x397.png)
Love Notes
Helps parents and caregivers show appreciation and love to their children without a rare epilepsy. It’s easy to drop an encouraging note into a lunch box or book bag to brighten your child’s day.
![VIPSibs_My_Family_Form_EN](/sites/default/files/tools-resources/2024-04/VIPSibs_My_Family_Form_EN.jpg)
My Family Is Living with a Rare Epilepsy Form
Intended for teachers or other key persons in your VIP sibling’s support circle, this form explains the impacts of living with a rare epilepsy on your child, and how the recipient can offer support and encouragement.
![VIPSibs_Seizure_Plan_Form_EN](/sites/default/files/tools-resources/2024-04/VIPSibs_Seizure_Plan_Form_EN.jpg)
VIP Sibling Seizure Plan Form
It’s important to figure out what role works best for your VIP sibling to make sure they’re comfortable during a medical emergency. Use this form to guide those conversations and make a plan that’s right for your child.
![VIPSibling_coloring_journal](/sites/default/files/tools-resources/2023-03/VIPSibling_coloring_journal-264x400.png)
Coloring Journal (Ages 4-10)
Positive messaging and thought-provoking, age-appropriate prompts encourage VIP siblings to express themselves through this fun and colorful journal.
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My Sibling Is Special Book
A comforting story you can read with your young VIP sibling to help them understand and cope with living with a brother or sister who has a rare epilepsy.
![VIPSibling_journal](/sites/default/files/tools-resources/2023-03/VIPSibling_journal-264x400.png)
Journal (Ages 11-18)
Positive messaging and thought-provoking, age-appropriate prompts encourage VIP siblings to express themselves through this fun and colorful journal.
![VIPSibling_sibling_study_fact_sheet_parent_version](/sites/default/files/tools-resources/2023-03/VIPSibling_sibling_study_fact_sheet_parent_version-296x400.png)
Sibling Voices Survey Infographic – Parent Version
Summary of learnings from the Sibling Voices Survey research project.
![VIPSibling_sibling_study_fact_sheet_sibling_version](/sites/default/files/tools-resources/2023-03/VIPSibling_sibling_study_fact_sheet_sibling_version-296x400.png)
Sibling Voices Survey Infographic – Sibling Version
Summary of learnings from the Sibling Voices Survey research project, created for VIP siblings to reassure them that they are not alone.
![VIPSibling_research_results_journal_epilepsy_behavior](/sites/default/files/tools-resources/2023-03/VIPSibling_research_results_journal_epilepsy_behavior-296x400.png)
“Psychosocial Impact on Siblings of Patients with Developmental and Epileptic Encephalopathies”
Full Sibling Voices Survey research results, published in the journal Epilepsy & Behavior.