Your Family and Rare Epilepsy

All rare epilepsy families face challenges—it’s a reality of living with a rare seizure disorder. You know better than anyone that caring for a child with a rare epilepsy requires considerable energy, time, and flexibility. And that has impact on every member of the family—including your VIP sibling. As helpful and involved as they may be with their brother or sister, VIP siblings have needs and concerns of their own. Sometimes, they feel alone.

Many siblings say they have learned to feel compassion and are more understanding of others who are disabled. Other findings showed that siblings can often feel stressed, anxious, or fearful.*

* A recent study called the Siblings Voices Survey looked at the emotional impact of growing up with a brother or sister with severe epilepsy.

How We Can Help

We’re delighted to offer you these unique resources to inform and encourage your families and your amazing VIP siblings.

VIP Sibling Parent & Caregiver Kit

Parents & Caregivers Kit

Designed by the rare epilepsy community to help parents and caregivers support their VIP siblings.

VIP Sibling Kit (Ages 4-10)

VIP Sibling Kits

Available in two age-appropriate versions, these kits are designed especially for VIP siblings to help them cope and celebrate how important they are.

VIP Siblings Tools & Resources Callout

Tools & Resources

Access at your fingertips to all printed components of the Parents & Caregivers Kit, VIP Sibling Kits, and more!