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Resources for Siblings

The rare epilepsy community understands and cares about the unique challenges you may experience having a brother or sister with a rare epilepsy, so they created resources just for you.

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Journal (Ages 11-18)

Pull out this journal whenever you feel the urge to draw, write, or doodle your thoughts.

Download: ENGLISH ESPAÑOL
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Sibling Voices Survey Infographic – Sibling Version

You are not alone! Learn more about what other VIP siblings think and feel about having a brother or sister with a rare epilepsy.

Download: ENGLISH ESPAÑOL
Family journal Guide

Family Journal

This journal is designed to be a communication tool that parents and VIP Siblings can use to express their feelings, including hopes, fears, and of course, their love and care for each other.

Download: ENGLISH ESPAÑOL